Calle is just getting over a cold from the past several days, she was really congested and had a heartbreaking cough.
Calle’s reflux seems to have improved somewhat. Incidents of “projectile” reflux are much fewer and farther between. Now its mostly the standard "spit up" episodes, nothing a good bib and a couple of burp cloths can’t take care of.
Calle hasn’t made as much progress with eating as we’d like. We still have to feed her via the 'NG' tube for 99% of her food. We visited our pediatrician a couple of weeks ago and he suggested that we consider having the 'G' tube surgery. The NG tube really isn’t a good long-term solution, and we’re probably going to be assisting her feeds for several more months as she matures and develops. A 'G' tube is basically a valve on the stomach that allows us to put food directly into it. It is usually associated with a Nissen surgery which prevents reflux (among other things). The Nissen is by far a more intrusive surgery and may have longer-term effects. We don’t feel like Calle is a candidate for the Nissen because her reflux is more of the “inconvenient” type and she is continuing to gain weight. In the past we’ve be opposed to any additional surgery, but we’re thinking that the discomfort of the \'NG\' tube in her nose and throat may contribute to her existing reflux situation. She has to wear socks on her hands so she doesn’t pull her tube out, and she still manages to get it out from time to time. Anyway, we haven’t made any firm decisions yet, and we’re going to PCMC for a consult in mid-July with the doc who would be doing the surgery.
Calle and Christian had the pleasure of visiting their friends from the NICU, Aiden and Liam. (see the pictures). While visiting, Calle was introduced to the Playskool Kick-start Gym. She loved it! (See the video) We searched every toy store we could find, including stores on the Internet. We finally had to buy it on eBay, and fortunately we were blessed enough to find one in great condition. We have it now and she loves it!
As part of our research on the 'G' tube possibility, we visited Calle’s friend Keslee (see pictures). Keslee has a 'G' tube and her parents were kind enough to demonstrate how it works and to give us some pointers. It was fun to see Keslee and her parents, and we wish them the best.
Finally, in just the past week or two, Calle has been holding her saturations at night without supplemental oxygen! We’re going to watch her for a few more nights and then consider ourselves done with oxygen! We thought this day would never come!
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